Alex's Room

♥ October 27, 2002-May 17, 2019 ♥

Alex is a 5 year-old who lives with his parents and grandparents. He has a very rare disease, Dyskeratosis Congenita (DC), that affects 1 in a million people worldwide.

Alex was diagnosed at age 3 and he participates in the inherited bone marrow failure study at the National Institute of Health. Alex's home is small and he needed a place to be with his family and hang with his many friends. Room to Heal created a new family room by building an addition to their existing family room. It has created a wonderful space for Alex to watch TV, play video games, play with his family and friends and create Lego masterpieces without taking over the rest of the house.

Under the direction of Lew Grubham construction, and with countless volunteers, the new family room was created in just three short weeks. We transformed a tiny space into a room the entire family can enjoy and a place for Alex to spread out and be creative. The room includes a TV/entertainment area, a toy storage system, and a large table for Alex to work on his creations or do homework. The Star Wars theme is evident as you cant miss Yoda hovering on one of the walls.

This project was made possible by the generosity of SEFCU, BAE Employee Service Fund, Rozen Foundation, and many other donor who provided financial gifts and in-kind donations. A special thanks to the dedicated volunteers who spent countless hours making Alex's wish a reality.