Ayana's Room

Ayana is a 7-year-old little girl who lives in Syracuse, NY with her mother, her 12-year-old brother and 5-year-old sister. At 4, Ayana was diagnosed with Xeroderma Pigmentosa, a genetic disease with such extraordinary sensitivity to sunlight that ordinary sun exposure results in the development of skin carcinoma as a very early age. Children with “XP” are sometimes termed “children of the night” as they can only play outdoors safely after nightfall.

Volunteers from A Room to Heal and friends were able to secure special funding, donations, and volunteers from the Syracuse area to create a wonderful new bedroom for Ayana and her sister. The room was decorated with a Disney Princess theme! The girls' room got new paint, new lighting, new carpeting, two twin beds, mattresses, dresser and night stands. A new DVD player was donated, especially for Ayana since she often cannot attend school because of severe Asthma attacks.