Jacob's Room

♥ December 11, 1999 - November 12, 2009

Nine-year old Jacob was diagnosed with adrenoleukodystrophy in September 2008. Leukodystrophies are a group of disorders that cause deterioration of the white matter, or myelin, in the brain. Jacob’s diagnosis is depicted in the movie Lorenzo’s Oil.

A Room to Heal transformed Jacob's bedroom, with leadership from board members Laurie and Ron Abess. Following a new bedroom addition for Jacob done by his uncle, the room now allowed for a wheelchair and easy access from the kitchen. Room to Heal donated some of the supplies needed to complete the project and created a wonderful healing space for Jacob.

The theme focused on the New York Giants, which included a fat head of Eli Manning, a new bed with comfortable bedding, and a reclining chair for mom and dad. In addition, Jacob received a 27-inch flat panel television donated by the Matthews family and a signature piece of art donated by Susan Kerr which read, “I will Survive.”. Volunteers spent the week leading up to Christmas completing this room.

A Room to Heal was so happy to have had the opportunity to meet this wonderful boy, he was so appreciative of his new room and us that he "dreamed of this room". Jacob's smile could light up a room and his hugs of appreciation will not be forgotten.