Scott's Room

Scott is a sweet, lovable, 4-year old boy with an extremely rare seizure disorder called Dravet's Syndrome. Scott started having seizures when he was only a few months old and continues to have multiple seizures every week. Seizures can sometimes be triggered by things such as light, temperature extremes, and commotion. Scott's condition is complicated by asthma and respiratory disorders. As a result of the Dravet's Syndrome, Scott's cognitive and motor skills have been declining and he struggles to communicate and focus his attention.

With ideas from Scott's physical and speech therapists, A Room to Heal was able to provide Scott with a safe healing environment where he can play, work on his physical strength, and practice his communication while at home. Scott's new room includes soft rope lighting, a ceiling fan and window air conditioner to control temperature, and a special velcro board to help Scott maintain his vocabulary. A busy board with light switches, buttons (Scott's favorite!), and knobs keeps Scott occupied and distracted from the real ones! A soothing fish tank set up high ads to the calming effect of the room, along with a television mounted with cords (another of Scott's favorites) well out of reach.

Many thanks go out to the volunteers who contributed their time and to the Johnson City Home Depot for their donation of carpet, supplies, and even a team of painters! Also to The Window Broker for their donation of safe, new double hung windows that can be opened without allowing Scott to crawl through the screens, and to Olum's for their discount for his furniture.